Agnes, once a healthy little girl, faced a sudden health crisis at the age of one, diagnosed with dilated cardiomyopathy. The road led them to Großhadern hospital, where, after trying various treatments, the doctors deemed Berlin Heart EXCOR® pediatric as Agnes's only chance for survival.
Agnes, once a healthy little girl, faced a sudden health crisis at the age of one, diagnosed with dilated cardiomyopathy. The road led them to Großhadern hospital, where, after trying various treatments, the doctors deemed Berlin Heart EXCOR® pediatric as Agnes's only chance for survival.
Agnes's mom shared, "We were scared at the beginning. We didn't want to accept that our daughter, our healthy daughter, would need that device. But today, she is alive with her own heart because of Berlin Heart, definitely! Hundred percent."
Initially skeptical about the device and the challenges it posed, the family embraced it as the only option. Agnes became a living example of resilience, surviving with her own heart one year and three months later. Her mom emphasized the importance of trust in technology and medical professionals, stating, "Trust the doctors. They are doing a great job, and they are definitely there to save lives."
Despite the challenges, Agnes's parents never lost hope. They encouraged other parents facing similar situations, sharing, "Never lose hope. Your kid has a chance. Your kid has this option of treatment which is perfect." They emphasized that with proper measures and precautions, life can still be enjoyed, even with a connection to medical devices.
Now living in Munich, the city where Agnes was saved, the family is emotionally connected to the place. Agnes, now a bit older and more conscious of herself, leads a healthy and normal life. Her mom expressed joy in the routine they now have, saying, "We can go on holidays, go up in the mountains, and she can go to kindergarten. We have a normal life."
As they approach Agnes's fifth anniversary, the family is ready to celebrate her triumph. She is truly a champion, embodying strength, resilience, and the power of medical advancements.
See Agnes' Journey on YouTube - Her own heart recovered after 14 month with EXCOR® Pediatric
Trademarks, images and texts are used with permission by Berlin Heart GmbH.
Juniper S.
Implanted at the age of seven weeks. “Our daughter Juniper was diagnosed with dilated cardiomyopathy when she was only two weeks old. She declined fast, and required a Berlin Heart when she was just seven weeks old. We were terrified! Juniper will be six months soon, and we're still waiting for her new heart, but thanks to Berlin Heart she's acting like a normal baby and thriving. We are beyond grateful for Juniper’s gifted physicians and for this life-saving device that have given us a chance to enjoy our daughter.” (Joni S., Juniper’s mother).
Mathias K.
"The EXCOR® is simply with us. And we are glad that something like this exists. It saved my life." – Mathias K.
Daniel
October 2018 - Daniel is ten months old when the diagnosis of dilated cardiomyopathy throws his and his parents’ world off the rails. The cardiac muscle of his left ventricle is pathologically dilated, which means his heart is no longer able to pump enough blood through his small body.
Chantal B.
"The mechanical heart has helped me to survive the time I had to wait for a donor heart“, says Chantal (30), who now works in real estate in Bremen and is simultaneously pursuing a doctorate at the University of Bayreuth.
